Emotional Wellbeing Support
As part of the ‘Better Together for Healthy Bone Marrow’ collaboration between the six charities listed below, the Psychology Team can offer specialist emotional wellbeing support to
April 5, 2024
We Are Fanconi Hope
We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Join the UK Fanconi Anaemia Registry
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Make A Difference
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
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Register now for the 2025 Fanconi Hope Adult and Family Weekend!
The Fanconi Hope Conference and Social Weekend is being held over Friday 27th June to Sunday 29th June 2025 at Lea Green Centre, Matlock, Derbyshire. We invite people in
March 18, 2025
Helping people to live well
We speak to Maria Mullan, one of the clinical psychologists behind the Better Together courses and webinars. Sometimes the mental challenges of living with Fanconi
December 17, 2024
Your stories
Hear from people living with Fanconi Anaemia, their parents and their loved ones
To Paris for Fanconi Hope
12-year-old Dexter “felt everything” as he set off from Woodley in Berkshire on his way to Paris by bike last August. His mission was to raise money for 3 charities,
Spotlight on fundraising: Team Ada
It was such a showing of love and togetherness… when things get hard, we know all those people are there for us.” Annabel Nicholls and 5 friends (“Team Ada”) raised
Meet James Gray
Meet James Gray, Sales Operations Manager, Aerospace and Automotive lover, world-traveller “In many ways I’ve lived the dream life: work hard, play hard” says James (42) who has developed his
Years
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It’s hard to believe but it’s now 16 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
Raised for Research and Family Support
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in Sponsored Research Projects
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