We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
In the past, producing newsletters and magazines alongside all the other important charity issues has been challenging but I am pleased to say that we now have significant additional support which should enable us to produce a magazine each year along with regular newsletters. Our first magazine is ready to read and packed with news
We welcome two new faces into the charity, Suzanne Lloyd, as PA to the Chair, and Katie Carr, as Head of Communications. Suzanne Lloyd is Personal Assistant?to the Chair of Fanconi Hope, working diligently behind the scenes, ensuring all administrative tasks are up to date. As the primary point of contact for all fundraising events,
The Together for Healthy Marrow Alliance brings together six small but mighty charities that support people living with rare conditions that include bone marrow failure as a symptom. The conditions include Aplastic Anaemia, Dyskeratosis Congenita, Paroxysmal Nocturnal Haemaglobinuria, Shwachman Diamond Syndrome, Fanconi Anaemia and a range of Congenital Anaemias. As the Alliance we undertook a
Ailish and her friends Patricia, Trisha, Anne-Marie, Carmel, Sandy and Sheamus ran the Dublin mini marathon and raised £3200 for Fanconi Hope. Ailish is no stranger to the long drive
Meet Louise Dalgleish, photographer, drag king, club night organiser, retail worker, enjoyer of life. “I do a lot” says Louise, underplaying the fact she currently has 6 jobs. These
What’s it like to feel like the only adult with a rare condition in a room of young families? What can parents of children and adults with the condition learn
It’s hard to believe but it’s now 15 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
