We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
We’re looking forwards to seeing everyone at the Fanconi Hope Conference and Social Weekend starting tomorrow! You can see the full programme of events and the list of presenters and helpers here.
Season’s Greetings to you all! Our 2022 Annual Fanconi Hope Newsletter is a review of all that has happened in our community over an exceptionally busy 2022.
We are delighted to announce that our Together for Healthy Marrow alliance of seven charities has secured support from The National Lottery Community Fund to build an ambitious three year project. This project is called Better Together for Healthy Bone Marrow. It will support our communities and strengthen our organisations. Over the next three years,
Read all about our £92,000 Grant to the University of Manchester for 3 year Proton Beam Therapy Investigation!
It’s hard to believe but it’s now 13 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
