Emotional Wellbeing Support
As part of the ‘Better Together for Healthy Bone Marrow’ collaboration between the six charities listed below, the Psychology Team can offer specialist emotional wellbeing support to
April 5, 2024
We Are Fanconi Hope
We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Join the UK Fanconi Anaemia Registry
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Make A Difference
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
Latest News
Podcasts from our Community
Introducing the Rare Voices podcast! People living with ultra rare conditions related to the bone marrow discuss how it affects their lives and offer their
June 27, 2025
The FA Europe Scientific Meeting 2025
The FA Europe Scientific Meeting, May 22nd and 23rd, 2025 at the Gaslini Academy in Genoa, brought together over 100 healthcare professionals, researchers and patient support group representatives
June 3, 2025
Your stories
Hear from people living with Fanconi Anaemia, their parents and their loved ones
My game, my rules Kevin Mansell kayaks and walks the counties of England and Wales for Fanconi Hope
“I wanted to do something to mark my 70th year” says Kevin Mansell, who turns 69 on the 10th of August, ‘so I decided to hike to the highest elevation
Family Funday Fundraising
“I wanted to do something positive and fun for families and the local community as well as raising as much money as possible” Lou Allen says of the Family Fun
To Paris for Fanconi Hope
12-year-old Dexter “felt everything” as he set off from Woodley in Berkshire on his way to Paris by bike last August. His mission was to raise money for 3 charities,
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It’s hard to believe but it’s now 16 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
Raised for Research and Family Support
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in Sponsored Research Projects
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