We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
The 2024 Fanconi Cancer Foundation (FCF) International FA Support Group Summit, held on Sep 19, at the same venue as the Scientific Symposium in Charlotte, N. Carolina, brought together patient support group representatives from 17 countries to discuss advancements, challenges, and initiatives in the field of FA. Key topics covered during the meeting included: ·
There is still a great deal we don’t know about FA, and while research to date has helped extend the lives of many people born with FA, our hope is that we can find more effective treatments of FA cancers. Fanconi Hope is currently supporting research being done by biomedical scientist Joseph Hallett, a 4th
Fanconi Hope was well represented at the 2024 Fanconi Cancer Foundation Scientific Symposium in Charlotte North Carolina, 26th – 29th September. Beth Lee, our Registry Liaison and Research Coordinator and Dr Riya Tharakan, a Clinical Research Fellow also working on the Registry, were invited to the event to present their poster on the results of the UK
It was such a showing of love and togetherness… when things get hard, we know all those people are there for us.” Annabel Nicholls and 5 friends (“Team Ada”) raised
Meet James Gray, Sales Operations Manager, Aerospace and Automotive lover, world-traveller “In many ways I’ve lived the dream life: work hard, play hard” says James (42) who has developed his
Ailish and her friends Patricia, Trisha, Anne-Marie, Carmel, Sandy and Sheamus ran the Dublin mini marathon and raised £3200 for Fanconi Hope. Ailish is no stranger to the long drive
It’s hard to believe but it’s now 16 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
