We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
Read about the invitation to all UK and Ireland FA Adults 18 and over to the joint UK- Netherlands FA Adults Theme Park Weekend, Fri 3rd – Mon 6th June 2022! Details can be found here.
Welcome to our 2021 Fanconi Hope Christmas Newsletter!Download the Newsletter 2021 (2.5MB PDF) Thank you for your support throughout the year. Without your help we would not be able to carry out our work supporting people living with FA in the UK and Ireland. .
Read all about our £92,000 Grant to the University of Manchester for 3 year Proton Beam Therapy Investigation!
It’s hard to believe but it’s now 13 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
