We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
As part of the ‘Better Together for Healthy Bone Marrow’ collaboration between the six charities listed below, the Psychology Team can offer specialist emotional wellbeing support to members of the Better Together communities facing emotional challenges relating to their or their loved one’s medical condition. This support is delivered by Lesley (clinical psychologist) and Amy (psychotherapist), who both specialise in supporting
We speak to Maria Mullan, one of the clinical psychologists behind the Better Together courses and webinars. Sometimes the mental challenges of living with Fanconi Anaemia and other rare conditions outweigh the physical ones and while stoically holding down the fort has its place, so too does finding connection with others and developing coping skills.
12-year-old Dexter “felt everything” as he set off from Woodley in Berkshire on his way to Paris by bike last August. His mission was to raise money for 3 charities, including Fanconi Hope and of course to have some fun along the way. Football and sport lover, Dexter, has been fundraising for 4 years (yes
12-year-old Dexter “felt everything” as he set off from Woodley in Berkshire on his way to Paris by bike last August. His mission was to raise money for 3 charities,
It was such a showing of love and togetherness… when things get hard, we know all those people are there for us.” Annabel Nicholls and 5 friends (“Team Ada”) raised
Meet James Gray, Sales Operations Manager, Aerospace and Automotive lover, world-traveller “In many ways I’ve lived the dream life: work hard, play hard” says James (42) who has developed his
It’s hard to believe but it’s now 16 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
