We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
Calling all UK and European clinicians and scientists with an interest in Fanconi anaemia! Registration is still open for the third annual FA Europe Scientific
Read the 2026 Fanconi Hope Magazine – online. (File size 36MB). If you wish to have a printed copy, please contact Suzanne at admin@fanconihope.org
“I wanted to do something to mark my 70th year” says Kevin Mansell, who turns 69 on the 10th of August, ‘so I decided to hike to the highest elevation
12-year-old Dexter “felt everything” as he set off from Woodley in Berkshire on his way to Paris by bike last August. His mission was to raise money for 3 charities,
It was such a showing of love and togetherness… when things get hard, we know all those people are there for us.” Annabel Nicholls and 5 friends (“Team Ada”) raised
It’s hard to believe but it’s now 17 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
