We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
Our Family Conference and Social Weekend is back in 2023! Fri June 30th – Sun July 2nd at PGL Adventure Centre, Caythorpe Court, Lincolnshire.More details to follow plus a survey for you to complete, asking what you would like us to cover during the event.For people with FA, their partners/families and carers in the UK
People living with Fanconi Anaemia need our help more than ever. With increasing pressures in our health service, and a cost of living crisis – it is too easy for the needs of people with the most rare conditions to feel left out, and let down. You can be there for someone with Fanconi Anaemia.
Season’s Greetings to you all! Our 2022 Annual Fanconi Hope Newsletter is a review of all that has happened in our community over an exceptionally busy 2022.
We are delighted to announce that our Together for Healthy Marrow alliance of seven charities has secured support from The National Lottery Community Fund to build an ambitious three year project. This project is called Better Together for Healthy Bone Marrow. It will support our communities and strengthen our organisations. Over the next three years,
It’s hard to believe but it’s now 13 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
