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UK FA Conference and Social Weekend 2023 – Save the Date!

Our Family Conference and Social Weekend is back in 2023! Fri June 30th – Sun July 2nd at PGL Adventure Centre, Caythorpe Court, Lincolnshire.More details to follow plus a survey for you to complete, asking what you would like us to cover during the event.For people with FA, their partners/families and carers in the UK

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Join Our Super Rare Campaign!

People living with Fanconi Anaemia need our help more than ever. With increasing pressures in our health service, and a cost of living crisis – it is too easy for the needs of people with the most rare conditions to feel left out, and let down. You can be there for someone with Fanconi Anaemia.

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Introducing Better Together For Healthy Bone Marrow!

We are delighted to announce that our Together for Healthy Marrow alliance of seven charities has secured support from The National Lottery Community Fund to build an ambitious three year project. This project is called Better Together for Healthy Bone Marrow. It will support our communities and strengthen our organisations. Over the next three years,

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