Adults with Fanconi Anaemia
Meet Louise Dalgleish
Meet Louise Dalgleish, photographer, drag king, club night organiser, retail worker, enjoyer of life. “I do a lot” says Louise, underplaying the fact she
August 2, 2024
All the News
Adults with Fanconi Anaemia
Being diagnosed with Fanconi anaemia as a child and as an adult—what are the differences?
What’s it like to feel like the only adult with a rare condition in a room of young families? What can parents of children and
August 2, 2024
Rare Voices Report Webinar
At the start of 2023, Fanconi Hope and our partners in the Together for Healthy Marrow Alliance concluded our National Community Survey into the experiences
April 22, 2024
Front Page
Emotional Wellbeing Support
As part of the ‘Better Together for Healthy Bone Marrow’ collaboration between the six charities listed below, the Psychology Team can offer specialist emotional wellbeing support to
April 5, 2024
Benefits Advice and Support
With thanks to The National Lottery Community Fund, who have funded our Better Together for Healthy Marrow Alliance Project, we are pleased to be able
April 5, 2024
Fanconi Hope Oral Microbiome Pilot Study
We are delighted to announce that we will shortly be embarking on a pilot research programme to characterise the oral microbiome in people with Fanconi
April 5, 2024
Fanconi Hope Annual Newsletter 2022
Season’s Greetings to you all! Our 2022 Annual Fanconi Hope Newsletter is a review of all that has happened in our community over an exceptionally busy 2022.
December 23, 2022
Introducing Better Together For Healthy Bone Marrow!
We are delighted to announce that our Together for Healthy Marrow alliance of seven charities has secured support from The National Lottery Community Fund to
September 6, 2022
Fanconi Hope awards £92,000 Grant to the University of Manchester for Proton Beam Therapy Investigation!
Read all about our £92,000 Grant to the University of Manchester for 3 year Proton Beam Therapy Investigation!
August 13, 2020