Join in our Social Media Discussions

Facebook Page

Fanconi Hope has a public Facebook page where you can see announcements from Fanconi Hope and where you can interact publicly with other FA families and Fanconi Hope supporters.

Closed Group

Request to join our closed Facebook Group: Fanconi Hope Family Support Group for more private discussions between people and their families living with FA.


Join us on Instagram


Join us on Twitter

Because of the rarity of the condition it is also well worth joining in the Fanconi Anemia Research Fund’s (FARF) Facebook Pages too as these have a much wider audience/participation. FARF has a public Facebook page for information sharing and a ‘closed’ Facebook Group: Fanconi Anemia Research Fund’s Family Support Group for more private discussions amongst patients and families worldwide. To join in their closed group you will need to contact Jordan Deines, their Family Services Director.

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Join our mailing list and we’ll keep you updated with our work, special events and ways in which you can make a difference. Your email will not be shared.