Join in our Social Media Discussions

Facebook Page

Fanconi Hope has a public Facebook page where you can see announcements from Fanconi Hope and where you can interact publicly with other FA families and Fanconi Hope supporters.

Closed Group

Request to join our closed Facebook Group: Fanconi Hope Family Support Group for more private discussions between people and their families living with FA.


Join us on Instagram


Join us on Twitter

Because of the rarity of the condition it is also well worth joining in the Fanconi Anemia Research Fund’s (FARF) Facebook Pages too as these have a much wider audience/participation. FARF moderates a private Facebook support group that allows adults with FA and parents of children with FA to exchange questions and information. An additional private Facebook support group only for adults diagnosed with FA is also available. Finally, a group exclusively for teens with FA is moderated by a few adults with FA.  If you’re interested in joining one of these groups, make sure you’ve signed up with FARF Family Services or reach out to FARF Family Services Director Jordan Deines.

Scroll to Top

Sign-up for Updates

Join our mailing list and we’ll keep you updated with our work, special events and ways in which you can make a difference. Your email will not be shared.