Rare Voices Report Webinar

At the start of 2023, Fanconi Hope and our partners in the Together for Healthy Marrow Alliance concluded our National Community Survey into the experiences of those with rare conditions affecting the bone marrow. This presentation shares some of the main findings from the Rare Voices report. You can watch Maria Piggin of the PNH UK charity give a summary of the report here. You can also download a copy of the report.

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