We know that nowadays more than half of the people living with FA in the UK and Ireland are 18 or over, so building an adult FA community is important to us.
If you are 18 or over with FA in the UK or Ireland, you are welcome to join the FA Adults WhatsApp group moderated by Louise Dalgleish. Only FA adults are in the group – no-one else! To join, email admin@fanconihope.org and Louise will add you to the group.
Louise has recently become a member of the Fanconi Cancer Foundation’s Adult Council so she has insights she can share about the Adult FA community worldwide.
Meet James Gray, Sales Operations Manager, Aerospace and Automotive lover, world-traveller “In many ways I’ve lived the dream life: work hard, play hard” says James (42) who has developed his international business career in the Aerospace and Automotive sectors in the UK and Dubai. “Living in Dubai gave me the opportunity to see the world”
Meet Louise Dalgleish, photographer, drag king, club night organiser, retail worker, enjoyer of life. “I do a lot” says Louise, underplaying the fact she currently has 6 jobs. These include part time positions in retail and hospitality which give her the independence to do the freelance work she really cares about: raising awareness around
What’s it like to feel like the only adult with a rare condition in a room of young families? What can parents of children and adults with the condition learn from each other? I met up with Stacy and Shabz for a chat about what living with Fanconi anaemia is like for them. Fanconi
