Fanconi Hope News

Read the 2026 Fanconi Hope Magazine – online. (File size 23MB).  If you wish to have a printed copy, please contact Suzanne at admin@fanconihope.org

We were recently asked if we could describe the progress in treatment of FA over the last 25 years, so we’ve put together a short summary based on the Fanconi Cancer Foundation’s Clinical Care Guidelines and reviewed by an expert FA haematologist/oncologist. In the past 25 years, Fanconi Anaemia treatment

We have just succeeded in securing a place for FA Europe in the European Haematology Association’s Patient Advocacy Committee. Jeannie Dalgleish from Fanconi Hope has volunteered to take on this important role on behalf of FA Europe and will be attending her first meeting of the group in April in

We are delighted to announce the formation of a Europe-wide Virtual Tumour Advisory Board.  This has been a key aspiration of our FA Europe Network for some time to provide a forum for clinicians anywhere in Europe to be able to seek advice on the treatment of head and neck

You might have noticed us talking a lot about FA Europe in our newsletters and may wonder how this relates to Fanconi Hope. As you know, there is a scarcity of both patients of experts in the UK and in any one country. One way we can multiply the impact

Fanconi Hope was well represented at the 2024 Fanconi Cancer Foundation Scientific Symposium in Charlotte North Carolina, 26th – 29th September. Beth Lee, our Registry Liaison and Research Coordinator and Dr Riya Tharakan, a Clinical Research Fellow also working on the Registry, were invited to the event to present their poster on

We welcome two new faces into the charity, Suzanne Lloyd, as PA to the Chair, and Katie Carr, as Head of Communications. Suzanne Lloyd is Personal Assistant?to the Chair of Fanconi Hope, working diligently behind the scenes, ensuring all administrative tasks are up to date. As the primary point of

The Together for Healthy Marrow Alliance brings together six small but mighty charities that support people living with rare conditions that include bone marrow failure as a symptom. The conditions include Aplastic Anaemia, Dyskeratosis Congenita, Paroxysmal Nocturnal Haemaglobinuria, Shwachman Diamond Syndrome, Fanconi Anaemia and a range of Congenital Anaemias. As

On May 24th 2024 the FA Europe Network held the first ever pan-European scientific meeting to promote collaboration on Fanconi Anaemia between European countries. This was the culmination of efforts initiated by Fanconi Hope and the Dutch FA Support Group (the Workgroup of the VKN) with the help of an