Trips & wishes
Merlin’s Magic Wand
What they do The Charity makes FUN accessible to children with Magical Days Out providing tickets and contributing towards a travel grant for families to
August 2, 2024
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Trips & wishes
Dreamflight
What they do Dreamflight is a registered UK charity that changes young lives through taking children with a serious illness or disability on the holiday
August 2, 2024
Trips & wishes
The Ellen Macarthur Trust
What they do The Ellen MacArthur Cancer Trust is a registered charity set up with its main aim to help children and young adults to
August 2, 2024
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Organisational update: welcoming new faces at Fanconi Hope
We welcome two new faces into the charity, Suzanne Lloyd, as PA to the Chair, and Katie Carr, as Head of Communications. Suzanne Lloyd is
August 2, 2024
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Fanconi Hope is now a registered charity in Scotland
With the move of Bob Dalgleish, the Chair of Fanconi Hope to Scotland we were obliged to register with the Scottish Charity Regulator as well
August 2, 2024
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Together for Healthy Marrow Alliance Update
The Together for Healthy Marrow Alliance brings together six small but mighty charities that support people living with rare conditions that include bone marrow failure
August 2, 2024
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Research: Microbiome Pilot Study
A significant grant from private individuals is enabling Fanconi Hope to fund a pilot study in Manchester to characterise the oral microbiome of individuals with
August 2, 2024
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Fanconi Anaemia Europe Update
On May 24th 2024 the FA Europe Network held the first ever pan-European scientific meeting to promote collaboration on Fanconi Anaemia between European countries. This
August 2, 2024
Adults with Fanconi Anaemia
Meet Louise Dalgleish
Meet Louise Dalgleish, photographer, drag king, club night organiser, retail worker, enjoyer of life. “I do a lot” says Louise, underplaying the fact she
August 2, 2024
Adults with Fanconi Anaemia
Being diagnosed with Fanconi anaemia as a child and as an adult—what are the differences?
What’s it like to feel like the only adult with a rare condition in a room of young families? What can parents of children and
August 2, 2024